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Parent Project MD

Hackensack, New Jersey

Cause Description:
Parent Project MD Parent Project Muscular Dystrophy (PPMD) is a not- for-profit organization founded in 1994 by parents and grandparents of children diagnosed with Duchenne and Becker Muscular Dystrophy. PPMD’s mission is to improve the treatment, quality of life and long term outlook for all individuals affected by Duchenne muscular dystrophy through research, education, advocacy and compassion. Duchenne muscular dystrophy (DMD) is the most common, lethal, genetic disorder of childhood. It affects approximately 1 in 3500 boys worldwide. DMD knows no boundaries and crosses into all cultures and races. DMD is a progressive muscle disorder for which there is currently no treatment or cure. Boys diagnosed with DMD typically lose the ability to walk between the ages of 10 and 13. They lose upper body function in their teens and sadly, most will lose the battle to DMD in their early twenties. PPMD has made great strides in the DMD community by funding high impact research, fighting to create standards of care, and providing up to date information to families regarding DMD treatment and care. It is the largest grassroots organization in the United States that is entirely focused on Duchenne muscular dystrophy and the well being of those affected by DMD.

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