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Share & Care Cockayne Syndrome Network

Waterford, Virginia

Cause Description:
We are a loving support group for families around the world who have been blessed with a child with Cockayne syndrome. We help children receive an earlier diagnosis so they can get support. We also important research on many levels but mainly translational research for treatments and a cure for our children suffering from this tapid aging syndrome. Share & Care Cockayne Syndrome Network started connecting families and researchers around the globe in 1981 and continues to be the worlds best resource network for families and medical professionals. Mission: Helping Cjildren with Cockayne Syndrome and their Families Improve their Quality of Life through Support, Education,and Research.

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